New and Improved

So Finn has been on ACTH for 9 days and I can not believe the improvement he has had. It's just amazing. For the past few nights he has been sleeping in his crib at night for 4-5 hours at a time, something he NEVER did. For the past 4 months I have been co-sleeping. I never wanted to co-sleep. I cherish my bed and sleep too much. But you do what you gotta do to get some sleep. Finn needed that reasurrance that he wasn't alone since his spasms and ticks woke him up and scared him. But with the ACTH doing it's job and relaxing his brain, he is finally able to get a decent nights sleep. I remember reading all the sleep books when Finn was like 3-4 months old, and they all said to put the baby in the crib when they are drowsy so they learn to fall asleep on their own. Well each time I tried that it was a huge failure. Finn would never fall asleep. So I gave up trying to sleep train and I switched to co-sleeping. But now things are different, Finn is different. Finn has been able to fall asleep on his own without being held and without his binky. His ticks no longer wake up, because he no longer has any ticks!



There have been times where I thought I saw a few seizures here and there but they don't look like how they used to. Which the doctors assure me is normal. That is how we know the drug is working. The seizures should be hard to spot, and eventually (hopefully) disappear all together. Now that we are down to 1 shot a day instead of 2, I am getting a little paranoid that the seizures will come back in full force. Finn and I have a busy week ahead of us. We have his 9 month check up appointment on Monday followed by a visit from his Early Intervention Specialist. I am so excited for her to see Finn. She will be so pleased to see the improvements in him. Tuesday we have the swallow study. Something that I am nervous about. Wednesday Finn has his Occupational Therapist appointment. Thursday we go back to see the Infantile Spasm expert. At that appointment we will go over the CT scan and make sure everything still looks ok in his head. Apparently, Finn has part of his frontal lobe on his left side, something I did not know until last week. The doctors were concerned that the left side was pushing too much onto the right side. So lets hope that is not the case. So yeah, busy week.

Everything about Finn is better right now. He enjoys playing by himself. He loves to lay on his back and talk to his toys. He is even better on his tummy now. Tummy time has been something we have been struggling with. He doesn't want to be on his tummy and if you put him on his tummy he would just lay down and not attempt to push himself up or roll himself over. But now look at him!