Eye doctor follow up

Today we had Finn's follow up eye doctor appointment. It's been 3 months since we have seen Dr. Rogers. Dr. Rogers was able to get a look at the cyst in his right eye and concluded that it has not changed in size. So that is real good news. I was able to talk to Dr. Rogers about how Finn appears to see much better with his glasses than his contacts. He explained that his contact needs to sit just right on the eye for him to be able to see correctly, even though his contacts are weighted, there is still a possibility for them to shift their position which would totally screw up the way Finn sees. Plus, some kids just do better with glasses...so for right now we will stay with the glasses. Maybe when Finn is a little older he will tolerate the contacts better. When Dr. Rogers was doing his eye exam he said that it looks like Finn's left eye is his dominant eye, which is interesting because that is the side that was damaged by the stroke. Dr. Rogers said that Finn's right eye will continue to turn in towards his nose, and will eventually need surgery in about 5 years to realign it. There is no amount of patching that can be done to correct this. He was also able to speculate that Finn's vision is about 20/100. I asked Dr. Rogers if a cornea transplant would benefit Finn down the road, and he said no. Unfortunately it's Finn's optic nerves that are the problem and that is because of the stroke. So even though the cornea transplant could help the right eye not have scarring or the astigmatism it still would not help him see better because of the optic nerve damage.

Its really hard to hear all these things. To think that there have been so many breakthroughs with vision and not one of these procedures will help him see better. The good news is that the cyst has stayed the same in size, and that my baby can see. All the staff just love Finn. They have been seeing him since he was 2 days old. Dr. Rogers is just fascinated with Finn. He finds it amazing that Finn can move all of limbs. Dr. Rogers was the doctor that discovered that Finn suffered the in utero stroke and he always tells us that he will never forget that day and that it was one of his toughest days because he had to break that news to us. I always respond with 'You think that day was bad for you..!' I am really a big fan of him.

Therapy continues to go well. Finn is doing remarkable with the vision toys they gave us. It appears he is slowly grasping the concept of cause and effect. His OT wants him to start wearing hard splints on his hands to get his hands really opened up. I notice that when Finn isn't wearing his soft splints he keeps his hands open a lot more often. Finn is hard to predict. We will be starting speech therapy in a few weeks. I am looking forward to that. next week is a big week for Finn and I. A lot of therapy and doctor appointments. So I am sure I will be updating soon.