Sunday, December 15, 2013

a few videos of Finny


Finn tries so hard to crawl...but he just can't seem to figure out that using your arms is key in crawling!

Tis the season to put on some weight.

Well it has been about 6 weeks since Finn had his consultation with the Feeding Clinic, and I am happy to say that since that time Finn has put on over a pound! He has been the same weight for about a year, give or take a few ounces. I am so pleased. He is gaining this weight just drinking the regular Pediasure...imagine how much he could put on if he drinks the Pediasure 1.5 (which they want him on...I just hope BCMH comes through with funding). We went to his CP clinic appointment earlier this week, and I was feeling good. Finn weighs over 25lbs and 3 feet tall. But his doctor comes in and says how he is concerned about how Finn is growing...and if things don't start picking up then we will have to go see an endocrinologist. UGH! Okay people, I am trying my hardest to get Finn to grow, it's only been 6 weeks since the feeding clinic...give us some time to get things rolling. So I just left that appointment feeling kind of deflated. Finn and I bust our butts trying to get results and when we finally gain a little ground it is still not good enough for the professionals. I just need to let it go, breathe, and be thankful that Finn is growing...even if I am the only one who notices...

In other news Finn had a meeting with his team at his school to discuss the start of his IEP (individualized education plan). This IEP is important because it will help teachers understand what Finn needs to work on, how he learns, and what his strengths are. I was actually pretty pleased with what his teachers, therapists, and specialists concluded about Finn. Especially what the vision specialist said about Finn. She says that he tracks objects, makes eye contact, looks at toys that are put in front of him, as well as tries to touch the toys placed in front of him. Obviously these are all things that I know Finn is capable of, but after our latest eye doctor appointment I was feeling pretty down about Finn's vision. I was relieved that this professional was able to see the same abilities in Finn as I do...just another example of how doctors do not know everything....Her conclusion of Finn makes me feel pretty positive that he might do okay in a regular school's special education program and not have to go to the school for the blind...but we shall see...In February we will have a meeting with Finn's team, Westerville school district, and the school for the blind where we will be able to ask them questions about which school will best be able to meet all Finn's needs. So no pressure mom and dad...His teachers and therapist all pretty much said the same things about Finn's personality, how he is a sweet boy, how he likes to be the center of attention, and likes adult interaction more than with his peers. That last statement I can't blame him because adults are all he knows. But I agree, Finn is a very sweet boy...he is the best.

Finn has been enjoying the holiday season so far...he got to see Santa and help me bake cookies...